August 2, 2012

Botox scheduled for August 20th.  Still trying to.get rid of this face cramp.
Where does time go? It's so fast I can't believe how drastic my life's changed since may and my last posting. Where to begin.

- The VA has assigned me a home health care team. A primary care, reistered nurse,  neurologist, psychologist, physical therapist, occupational therapist, nutritionist, and social worker.

 They all visit me evry two weeks. They are all incredible.  All I can say is "than you VA".

- went to the ER last month. I had a UTI and was dehydrated.  Anna Caseman hospital did a great job of nursing me back to health. They took a catheter urine sample, gave me an IV, gave me antibiotics, and took X-rays.   I'm.all clear finally.

- My daughters came for a week. I miss them everyday. They live 8 hours away in Phoenix.

- rascal finally got neutered.

- will finish this post later.

May 23, 2012

Botox again this past Monday   Fingers crossed   19 injections to  the  face    Naomi and Victoria went   Victoria looked a bit ill    

May 19, 2012

Elvis our 15 year old Boston just scared the hell out of Me he started to choke on something, threw up, fell to his side (passed out for a few seconds). I ran over to try CPR but he was up and wagging his tail and chasing trouble and rascal shortly after he gobbled up his barfed up food. Damn dog had me at blowing snot bubbles! -tb Like · · Share

March 2, 2012

Weebles wobble and THEY DO fall down!

Having increased balance issues. Near falls or actual hard falls daily. What can I do? I simply say ouch and get up.  Luckily I haven't hurt  myself ..... yet. Well art least not to bad.

February 2, 2012

Young onset parkinsonian with severe facial dystonia and Blepharospasm

The attached video link is me working with my speech therapist on a very bad morning. Young onset parkinsonian with severe facial dystonia which effects speech and  and Blepharospasmm a neurological movement disorder involving involuntary and sustained contractions of the muscles around the eyes (click here for video)

August 18, 2011

DBS appointment


Back from neurology. No video today. They increased my DBS setting to 3.4v on both sides. Up from 3.0. Monitoring for positive or negative side effects. My neurologist is waiting to hear from the rehab ward about a bed for a few days. She's going to have them evaluate my current intake of ldopa, possubljy add pain pills for my back plus rehab, mental health visit (no problems there), and match wits with the rehab doctor. She will try Botox again on my facial and cervical dystonia Iin 2 months. She had the dermatologist look at the mole on my toe and he said it's a wart. It will go away. My first wart ever. Still looks like a mole to me. Another fun and funny appointment.